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Dystonia
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A Disorder That Stops the Music
Today, though it is by no means fully understood, the disorder is called focal dystonia. Dr. Wilson read a condensed version of that paper on Saturday at the Grand Hyatt New York during the two-day “Musician's Summit” presented by the Dystonia Medical ...

Mutations in CIZ1 May Cause Adult-Onset Cervical Dystonia
Mutations in CIZ1 may cause adult-onset primary cervical dystonia, according to a study published online Feb. 1 in the Annals of Neurology. THURSDAY, March 15 (HealthDay News) -- Mutations in CIZ1 may cause adult-onset primary cervical dystonia, ...

Cervical Dystonia
GARY S. SY MANILA, Philippines — Cervical dystonia, also called spasmodic torticollis, is a painful condition in which your neck muscles contract involuntarily, causing your head to twist to one side. Cervical dystonia can also cause your head to ...

UF movement disorders center gets $100000 donation
The UF Center for Movement Disorders & Neurorestoration on Friday received a $100000 donation to establish the Tyler's Hope Season of Hope Fellowship for clinical training and research in dystonia, Parkinson's disease and movement disorders.

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Real-time

oreillydesign A Disorder That Stops the Music: Michael's Miracle: Making Dystonia Disappear was published on 3/5/2012 inside t... http://t.co/Lpp8ZqZp

heddendlina RT @JennHasting: Generalized Dystonia Arms Legs - http:tcoNhF92JdB

Marie_Ramos8 Scientists identify gene that causes adult-onset primary cervical dystonia http://t.co/0kYtaBts

rach_eva Lol why doesn't someone explain somatization to this woman. Jfc, this is cray. You don't get dystonia IN ONE DIRECTION.

Marie_Ramos8 Cervical Dystonia http://t.co/8FRY1DPn

indian4ever dystonia: dystonia is a post from: Indian4Ever dystonia is a post from: Indian4Ever Dystonia – Wikipedia, the fr... http://t.co/JmaiE1vq

NikAbramson Oh dystonia I do not like you go away

LizzyHolder Late on a Saturday nite, just here with Snackwell and my dystonia hurting. Haven't tweeted in such a long time!

FLVTubeTweets Dystonia: #Dystonia #Dystonia http://t.co/dNpYPLsU #google #youtube

JenAnderson14 Good News for Medtronic DBS Therapy Analyst Blog Critic’s Notebook Dystonia Which Struck Glenn Gould and Other Music... http://t.co/KtOCFZHI

JasonWallace32 Generalized Dystonia Arms & Legs - [...] http://t.co/biiftvAa

JennHasting Generalized Dystonia Arms & Legs - [...] http://t.co/NhF92JdB

MaXiMotion1 I liked a @YouTube video http://t.co/iTN36SPu Dystonia Facial Spasms

jmghent @Barbara_Smeaton while visiting @bingslnzp I saw this beautiful painting from #Dystonia art auction http://t.co/0CWMxEbh

carlygoulianos @beatdystonia Make sure you mention how this girl claiming to have Dystonia on 20/20 was never actually seen by a neurologist.

Discussions

i have neurocirculatory dystonia what do i need to do to treat it? by Q:

A: Dr. Fred Clary's Functional Analysis Chiropractic Technique ... walk and move to determine the most appropriate places to treat, not just pain. ... But you DO need to know how to breathe

The Woman who got Dystonia from the Swine Flu Vaccine? by ooh Q: That is so fake, it's ridiculous.

A: 1. she got the seasonal flu shot not the H1N1 shot. 2. No medical or health expert has verified that her condition is in any way related to the flu shot. 3. Some physicians believe she is not suffering from actual Dystonia but rather a psychogenic form of the condition, i.e. a psychological disorder. (Psychogenic seizures are 3 times more common in women). 4. Although, no medical professional has made the claim that it was caused by the flu shot, the reporter of the initial story clearly wanted to sensationalize the story and plays with the language while avoiding liability. http://www.youtube.com/watch?v=oGT0r-udstQ "Doctors say she has a medical condition called dystonia that was triggered 10 days after she got a flu shot." No mention as to whether the dystonia might be psychogenic, as many doctors claim. No mention of what actually triggered the condition just that it happen 10 days after she got the flu shot. He could have just as easily said it was triggered 10 days after she ate ice cream. It's tragic but there's just no evidence that the flu shot had anything to do with it. More and more even the press is saying "She believes" it was caused by the vaccine. Because there's no medical evidence that it was. http://gannett.a.mms.mavenapps.net/mms/rt/1/site/gannett-wusa-3312-pub01-live/current/launch.html?maven_playerId=articleplayer&maven_referralObject=1294691939

what is the difference between dystonia, tremor, and parkinson's disease? by Q: since those three are world's most common movement disorder, what makes them different from each other? plz, need answer ASAP. best answer gets 10. its for general knowledge.:D

A: Dystonia is one of the dyskinesias which are characterized by uncontrolled involuntary movements and diminished voluntary movements. Dystonia is can be a separate condition or part of another disease or syndrome. I actually like the Wikipedia description: "Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal postures. The disorder may be hereditary or caused by other factors such as birth-related or other physical trauma, infection, poisoning (e.g., lead poisoning) or reaction to drugs, particularly neuroleptics" or dystonia can be a side effect caused by the decreased supply of levodopa in the system or part of the "wearing off" as seen in Parkinson's disease. Dystonia often involves the body or head. The movement is often large, sweeping and very disruptive. Tremors are rhythmic involuntary muscle movements which are not intentional. The tremor can fall into several types. There is a series of tremors known as essential tremor which can fall into several categories. Essential tremor can be a resting tremor or an intentional or action tremor which occurs when a person initiates an action. There are several more types of Essential Tremor. Tremors can involve any part of the body including the voice but commonly involve the limbs, especially the hands. The movements are smaller movements, more rhythmic than dystonia. Tremors can be symptoms of a condition, early warning signs, temporary, or a specific tremor disorder. In conditions other than S, tremors often appear bilaterally. Parkinson's disease is classified as a neurodegenerative disorder. Although symptoms vary from patient to patient, tremor is one very common and easily recognizable symptom. In PD tremor usually begins on one side of the body, often in the hand and progressing to the leg and foot on the same side. As the disease progresses, the same symptoms appear on the other side of the body. Dystonia or Dyskinesia actually often occurs when levodopa wears off. It is often such symptoms as dystonias and extreme tremor which cause people to seek a surgical solution through DBS. There are many other symptoms of PD. Slower movements, stooped shuffling gait, balance issues, stiffness, pain, swallowing problems, cognition problems, sleeping disorders, PD depression, hallucinations, freezing, vision problems, loss of sense of smell, constipation, urinary problems and ED are just some of the most common. One of the best sources of information about your key words can be found at WeMove.org http://www.wemove.org/ Here you can find not only the best answers to your question but many more questions.

Has Dystonia scared you out of getting a flu shot? by Dictator Skittles Q: i know its only a 1-1,000,000 chance but still i havent got one yet though... i know its only a 1-1,000,000 chance but still (its that girl who cant walk forward correctly off the news)

A: Not at all. I'm more likely to get the disease.

Do you have tremors you may have dystonia? by Q: I have dystonia with tremors and jerking i got dygnosed 10 years ago you would need to go to a neurologist then they would give you a MRI and neuro test

A: What's the point of this info in the incorrect forum?

What is a medical condition called "dystonia"? Is it painful ? by Jaydens dads dominatrix Q: ( no dictionary, and the computer won't take me out of Yahoo spell check--hope I spelled it correctly)

A: Dystonia is a neurological disorder, it causes twitching, pulsing, twisting of the muscles. It is painful/

tardive dystonia drug induced in hospital who is responsible? by Q: SEVERE ALLERGIC REACTION ANAPHLAXSIS TIN E.R ROOM NUROLEPTIC DRUGS COMPAZINE ANYONE HAVE SIMILAR SITUATION? i was drug dumped and have heart problems now they did not diclose on beta blocker as of july 13th falsyfied reports information missing in med records list goes on....

A: Unless the patient has a history of similar reactions to compazine and it's given anyway, then nobody is responsible. If the doctor ignores the allergy history, then he/she is responsible. Unfortunately, sometimes patients just have bad reactions to a drug.

Are you aware of what Dystonia is? by 2 Happily Married Americans Q: Just wondering if mainstream America has heard of or knows of this. It will be interesting to hear back. Just let me know if you have no idea, or what you think it is.

A: Dystonias are sustained involuntary muscle contractions, often distorting body posture. Dystonias can be primary or secondary, and they can be generalized, focal, or segmental. Diagnosis is clinical. Treatment is with an anticholinergic drug or reserpine for generalized dystonia and botulinum toxin for focal or segmental dystonias. Please see the web pages for more details on Dystonia.

does anyone else have myoclonic dystonia? by ☮☮BB☮☮ Q: if you do, what bothers you the most? do you have any of the non-movement symptoms? are you treating any of your symptoms with any medication? are you seeing any results?

A: you may want to put those sorts of questions to a doctor and he can tell you what sort of percentage chance you are looking at to have any of those problems.

My mom has dystonia and I just saw the video about it being triggered from a flu shot, should I not get one? by The Running Marshmallow Q: I'm a 16 year old boy. I'm just going to throw this out there. My mom has distonia. My mom has neck spasms and her legs jerk. I get spasms in my legs all the time and I haven't been diagnosed, but my school wants me to get a flu shot. I'm scared now. Should I not get the shot? Someone please answer. This is serious

A: Did your mom get it from a flu shot? Relax. Your odds of a reaction to a flu shot are probably less than getting hit by lightning.

seeking alternative treatment for dystonia? by eechia55 Q: have been suffering from dystonia for close to 2 years - have seen several neurologists but were told no cure. Anyone one know of any person who is suffering from the same disease and have been cured?

A: distonias, or aberrent posturing can be caused by certain antipsycotic or major tranquilizers. In this case there likely isn't anything that can be done beyond trying different meds. If this is a stand alone disease then you could try doing cleanses including full body, colon, blood, parasite, candida. Limit caffeine, sugar, any sugar substitutes, especially high fructose corn syrup. I'm not to informed about this particular disease, so I'm not totally sure what the best steps to take are, but these should at least help the situation. H2o2 treatment may also help.

Dystonia where middle finger curls under? by Shadowfaxw Q: My middle finger is starting to curl under, yet all the cases of dystonia i know about are where the 4th and 5th curl under. I am a pianist

A: might have something to do with the piano. Do you work outside or sweat alot. Sometimes and electrolyte imbalance can cause these symptoms.

does pain from cervical dystonia ever dissipate? by Q: I have had botox shots in my neck which help somewhat....will I need them forever?

A: Yes, it sometimes does dissipate. There is no cure for cervical dystonia, but the disorder sometimes resolves on its own. http://www.mayoclinic.com/health/spasmodic-torticollis/DS00836

what do you know about dystonia? by Q: is dystonia really a 1 in a million disease? what are its effects on teenagers(only)? do u have any general knowledge about dystonia? plz help. i am really interested to know more about this disease. best answer gets 10.:D is "A study to describe and analyze the effects of dystonia to teenagers" as a term paper topic be difficult?

Does any one know about cirvicle Dystonia? by Q: I have Dystonia and it hurts alot, I'm having Botox injections but there not working. Does any one know of any oral meds that could releave the stress on my neck???

A: Here are a couple of places to start looking. http://www.mdvu.org/library/disease/dystonia_cervical/cdys_sym.asp Health.Kosmix.com en.wikipedia.org/wiki/Spasmodic_torticollis www.netdoctor.co.uk/diseases/facts/dystonia.htm hope this helps.pp

What are the chances of getting dystonia from the swine flu vacine? and the chances of the regular flu vacine? by Q: ???

A: The chances of getting dystonia from the vaccines you mention are very slight. Check with your doctor, but sometimes it is a hereditary cause, rather than the vaccine itself.

Hello! I had a baclofen pump installed in my stomach for Dystonia. It makes a ticking noise. What is it? by Q: Baclofen Pump for Dystonia and Spasticity! Questioning a ticking noise it makes

A: Hi Natasha. I also have an intrathecal pump (with a mixture of baclofen and other meds). I occasionally hear mine tick, but after nine months I generally don't notice it any more. I've never actually asked, but have always assumed that it's just due to the mechanics of the pump as it meters out the correct dose for infusion. Hope that helps.

How are Cervical Dystonia and ET tremors related? by shake&bake Q: I am having head tremors. I had them once about 7 years ago when I was under extreme stress, but they seem to go away. I have always felt like there was something wrong with my neck on my right side. I always have tenderness and pain and suffer from headaches alot. Do you think this could be related?

A: You may be suffering from another type of localized Dystonia called Torticollis. (painful neck spasms) Often sufferers of Dystonia have more than 1 area involved. generalized dystonia can occur as a result of neurological disorders such as Parkinson's and strokes. It is difficult to treat but anticholinergic and benzodiazepine drugs often help. Biofeedback is also helpful.

Can a disease known as Dystonia turn into Parkinson's Disease? by greenburg603 Q: I have a friend that has dystonia and what it is involuntary movement. Here is a complete guide to what dystonia is.F Dystonia Program Description Dystonia is a syndrome characterized by twisting involuntary movements or sustained postures. Virtually any part of the body can be involved including the muscles of the face, speech and swallowing, neck, trunk, arm or leg. The disorder may be inherited or may occur in the absence of a family history. The disorder may appear in childhood or adulthood. It is an unusual condition, and is frequently misdiagnosed. In some families, dystonia is an inherited condition. In others, dystonia may relate to an underlying brain abnormality or may follow chronic exposure to certain drugs. The diagnostic evaluation focuses on elements of the history and physical examination which may elucidate the cause of the disorder. However, in many cases, no cause may be found. Once present, dystonia tends to be a life long illness, though For more information about dystonia go to this website www. rush,edy and type in dystonia.

A: Parkinson's is from a lack of Dopamine in the brain but the cause of it is not known. The description above sounds pretty gloomy. The web site below is much more encouraging. An exerpt: Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. The neurological mechanism that makes muscles relax when they are not in use does not function properly. Opposing muscles often contract simultaneously as if they are “competing” for control of a body part. The involuntary muscle contractions force the body into repetitive and often twisting movements as well as awkward, irregular postures. There are approximately 13 forms of dystonia, and approximately 50 diseases and conditions include dystonia as a symptom. Dystonia affects people of all ages and backgrounds. 50 diseases and conditions include dystonia as a major symptom. www.dystonia-foundation.org Best wishes to your friend!

what is the medical diagnosis dystonia? by Q: what is the medical diagnosis dystonia?

A: involuntary muscle contractions.

Can anyone tell me what psp game is suitable for me as my left hand had dystonia and not flexible? by OsemeBinLatin Q: Please help,i really want to play my psp,before my disease attack me i was able to play,but now its so hard for me to press..

A: Not sure.

Is the story of the cheerleader who got dystonia after getting a flu shot a hoax? by AC Q: is this real? and should you be scared? watch it if you haven't seen it. http://www.youtube.com/watch?v=oNuExNQ7WJo&feature=related

A: Desiree Jennings decided it would be a good idea to get the seasonal flu shot, but ten days after her shot she got sick and was finally diagnosed with Dystonia. Read more on her Desiree’s heartbreaking story below. Do you think the flu girl is a hoax? There are many that wonder if the flu girl video is a hoax? But sadly it appears to be all too real, especially for Desiree Jennings. Jennings went to her local Safeway and got the flu shot as a precaution so she wouldn’t be out sick with the flu, but soon she became very ill. “I got flu-like symptoms — nausea, vomiting, body aches, fever — then was lethargic for a week and started blacking out,” said Jennings, an AOL employee and Washington Redskins ambassador hoping to become a cheerleader. Doctors were baffled as to why Desiree’s speech and walking were so affected. So Desiree saw neurologists, physical therapists and psychologists.

The Cheerleader who got Dystonia from Flu Vaccine, is it real? by genius c Q: i'm scared. what if the government makes it mandatory for every citizen to get flu shots? my brother was already required to get one by his job at the hospital. was the dystonia caused by her genes or by the shot? i don't want dystonia. i don't want to be killed by the government. what should i do?

A: While I won't be getting the flu shot this year and I'm not certain what risks it poses I do not believe that it caused that cheerleaders dystonia. Dystonia is a slowly progressing disease and is usually due to a genetic abnormality. Here is an article from the official dystonia foundation about their view on the disease and the woman mentioned in the video: http://www.dystonia-foundation.org/pages/dystonia___flu_vaccine/569.php Don't get the flu shot if you don't want to, but as for dystonia I wouldn't worry.

Can you develop dystonia through certain dances? by Dennis J Q: Like tight jerky dance moves like the robot, and pop-locking dance moves.

A: No - dystonia occurs from abnormal chemical changes in the brain. The only way jerky dances are likely to affect your brain is if you are using ecstasy or some other drug that is linked to brain damage.

Does dystonia kill? After a few complications leading to Parkinson's disease? by Rae Q: Its an inherited disease, and the symptoms are like Parkinson's disease. Could dystonia, after a few complications, actually lead to Parkinson's?

A: First of all, Parkinson's does not kill so I would guess it is very unlikely that dystonia can kill. A person can die from complications associated with these diseases such as choking, but anyone can die of choking just as anyone can go outside tomorrow and get hit by a car. Though I cannot answer if dystonia can lead to PD, similar but if you read this link below, you will find a little info on the difference between the two. PD is not always an inherited disease, but there are people with a mother, or father, or brother, sister who have had it and they have it, but many who have siblings with PD or PD like diseases never get it. A GOOD neurologist would be able to better assist in determining what is taking place and treatment. Here is the link, hope this will help you some! Hugs http://www.pbs.org/independentlens/twisted/dystonia.html

Any experts out there on cervical dystonia? by kathyinalabama Q: I need to find out if whiplash would have caused this condition in my case, since it involves a auto accident 1 1/2 years ago. I suffered from musculoskeletal strains/sprains in the cervical, thoracic and lumbar spine areas, as well as a annular bulge at C5-6. I have gotten worse over time with severe muscle spasms in the spine and aggravation of pre-existing fibromyalgia, on top of other medical problems including degenerative disc disease. I was diagnosed with cervical dystonia yesterday and received marcaine injections and will return in three weeks for more, probably with Botox or Myobloc.

A: I'm not an expert, I'm a nurse and have taken care of people with various and sundry neuro-muscular diseases. From what i have read this is a condition that has a strong genetic component, but often the onset of symptoms is related to trauma of the neck and head. look at th link below, click to see the main site and click on causes/genetics. The first reply was wrong, it isn't just stiff neck, but causes some strange posturing. Do talk to an attorney if you haven't already. did your drs. talk to you about the trauma trigger? were they willing to go on record, if they linked our trauma with the condition? Just because you had an inborn propensity to a certain condition does not change that the trauma triggered the symptoms. Injections have been used. Also depending on your age, remissions have occurred temporarily and some permanently. Read all you can to understand what you have. A lot is being done , but many treatments are experimental, make sure you know which are being used, do your homework.

What's the best job for someone like me inflicted by Dystonia "handwriter's cramps? by leslie de jesus Q: I resigned from my job and I'm going to Dubai 2 weeks from now. Hoping to find a career. With this disease, do i have an option?

A: use voice activated software. look at Hawkings...he's in a wheel chair.

Could this describe Dystonia or something else? by §♫♪‹(•¿•)›☼»-(¯`v´¯)-»\\ Q: Sound frequencies make my face grimace and make my muscles in my arms & legs spasm. What disorder would? What disorder would this be? This action is uncontrollable.

A: Stiff Person Syndrome--it's a movement disorder caused by the body's immune system attacking the nerves, and results in uncontrollable movements, which are often worsened by loud sounds or emotional stress. For more info, go to www.wemove.org. And see a neurologist immediately; Stiff Person Syndrome can easily become disabling, or even life-threatening if spasms of the chest interfered with breathing.

How long does dystonia last? by ladybugoctoberone Q: How long does dystonia of the face cause by Reglan last?

A: No one can predict that. I have seen it last six months. I have also seen it become permanent. I hope things go well for you.

Does The Bachmann-Strauss Dystonia & Parkinson Foundation partake in any kind of animal testing? by andrewofandrew Q: I am wondering if they use animal testing.

A: Probably not directly themselves, but they fund a lot of research, some of which would definitely incorporate products which have been animal-tested.

Does anyone have natural ways to raise dopamine levels? I am having a bad spell of my dystonia.? by 2 Happily Married Americans Q: Evennn typing is veyr difficult right now. mylegs are copmletely in spasms and my showlder and finggers are alsossstuccccccking.

A: sex

What is the number of chromosomes that are associated with dystonia ? by Q:

A: Over 15 genes have been associated with dystonia. The location of some of these genes are unknown and some are known. It is an active field of research and more genes are likely to be found.

I need to find or develop a safe chat area for Dystonia -our area has been hacked? by jean_has_cats Q: Hi I frequented a chat area for dystonia and other movement disorders, it was wonderful till we got "assaulted" if you will and the room was shut down. I need a room where people can be booted or banned, for real with similar controls that most game sites have for excessive chat and such, making it a free exchange for a rare disease area. I unfortunately can not trust the site to come on line again with proper controls, but have found for many the comfort and information exchange for a rare disorder is extrodinary. Please just help point me in the right dircection, and not to wemove.

A: There is an excellent forum that you can enter two ways. I have it saved in favorites and not bringing it up for some odd reason. You can search Brain Talk Communites Support forums and scroll down to Dystonia...you can try this url: http://brain.hastypastry.net/forums. This is created by the Harvard Massachuetts Hospital and has numerous conditions and diseases on it. I use it for my Myasthenia Gravis which at this point is very stable. Let me know if you have a problem with it. Also have you gone into yahoo groups and searched in there? Hope this helps. I do highly recommend the Brain Talk Communities. I checked and there are quite a few people in that forum. Jean, I noticed you added me to your fav contacts. You can contact me at [email protected]

Has anyone heard of the Dystonia Do Come Event? by Maud B Q: I heard about the Dystonia Awarenss Don't Come Event that was held on Valentine's Day 2007 with celebrity comedian guests as speakers but was unable to attend. Recently I heard about the Do Come Event for Dystonia Awareness sometime this month (March) and wonder if anyone knows who the celebrity guest, if any, will be at this dinner event. I heard about the Dystonia Awarenss Don't Come Event that was held on Valentine's Day 2007 with celebrity comedian guests as speakers but was unable to attend. Recently I heard about the Do Come Event for Dystonia Awareness sometime this month March 31st, and wonder if anyone knows who the celebrity guest, if any, will be at this dinner event: Http://docomeeventvenue.webdesigngenie.com

A: There will be appearances by several celebrities of Kentucky.

Are there any massages to relieve neck pain from dystonia? by kjm;jhlkjhnb Q: My neck always hurts, how do I relieve the pain?

A: What triggers your dystonia?

do you know about dystonia? What is the best procedure to cure it? by MARIO G Q: It's involuntary movements of the muscles.

A: Drugs, such as anticholinergics which act as an inhibitor of the neurotransmitter acetylcholine, may provide some relief. Clonazepam, an anti-seizure medicine, is also sometimes prescribed. However, for most sufferers their effects are limited. Botulinum toxin injections into affected muscles have proved quite successful in providing some relief for around 3-6 months, depending on the kind of dystonia. The injections have to be repeated and around 15% of recipients develop immunity to the toxin. There is a Type A and Type B toxin approved for treatment of dystonia; often those that develop resistance to Type A may be able to use Type B. Surgery, such as the denervation of selected muscles, may also provide some relief. Recently, the procedure of deep brain stimulation has proved successful in a number of cases of severe generalised dystonia.

What is the probability of other children inheirting dystonia? by Jade S Q:

A: If dystonia is a genetic disorder there is different probabilities of getting the disease based on the parents genetics. 1. If both parents are carriers, the child has a 25% chance of having the disorder, and a 50% chance of being a carrier. There is also a 25% chance that they will have 2 dominant genes and will not pass it on or have the disorder 2. If one parent is a carrier and the other is not, then there is no chance that the child will have the disorder. 3. If one parent has 2 dominant non-disorder genes and one has the disorder, the child will not have the disorder but will definitely be a carrier (100% of the time). There are different situations. Can you please elaborate on your question.

who can help out a person with a need for brain surgery for the disease dystonia? by warren100 Q: i fell off an excercise ball, ending up with spial damage, not being able to swallow and dystonia. I sold everything i had to get therapy to stay alive but now i found out i need more treatments including genetics, therapy, brain surgery and surgery of tendons and muscles.

A: It's always good to do a lot a research before doing surgery, especially brain surgery. Brain surgery is quite an extreme thing to do for dystonia. Are you seeing a dystonia specialist or just a general neurologist? There are a number of other treatment options. Don't let your doctors scare you, especially when you're feeling perhaps a bit helpless and down. Take charge of your body and do research on your own. You can always have the surgery - but take a deep breath and do not rush into it. See a dystonia specialist. Most other doctors don't know enough about dystonia conditions as such conditions are often rare. A specialist will be at the forefront of what can be done and will not just shove you into surgery. A good place to contact is Columbia Presbyterian Hospital in New York City. They are at the forefront of dystonia research. Check out the website : http://www.nyp.org/health/dystonia.html Also read up on research at: http://www.dystonia-foundation.org/ Don't give up. It will get better. Believe in your own strength. Take control of the situation. Do NOT let it control you! Also: You mention something about genetics. There is no such thing as genetic treatment for dystonia. It does not exist. There is no chromosome or chromosomal marker that can be identified as a dystonia carrier. You definitely need to see a dystonia expert. Otherwise you'll end up as a guinea pig. Dystonia can be alleviated and managed. Botulinum toxin (BOTOX) works great for many, many forms of dystonia. It could work for you too. Brain surgery should be and IS the LAST and FINAL resort. When ALL other options are COMPLETELY exhausted only. It's a high risk operation. Now you've got me worried. Please do not rush into anything, ok? And lastly: this is not a disease. It is a condition. There is a difference. You're not sick.

Does anyone have any information on new treatments for dystonia? by mumblestoo2002 Q: I have had the Botox treatments (very painfull), Epidural steriod injections, Radio Frequency treatment, and on and on and on. I need help very badly.

A: www.parkinson.org/beans. try this website if its of any help. try chinesse medicine as well

What is the prognosis for cervical/ general dystonia? by rhino9joe Q: Started with tinnitus, then neck pain called spondylosis, found I had a stroke, now the leg and arm muscles feel either stiff or uncontrolled...now called dystonia because my head turns sometimes uncontrolled painfully and I can't predict when that will happen because of other body moment in a given day. Total paralysis???

A: go to your doctor

What is the difference between muscle spasm and dystonia? by Edwin L Q:

A: Muscle spasm occurs when there is a continuous muscular contraction. Dystonia is when there is no proper muscular tone.

Desiree Jennings so called incurable disease "dystonia" that was caused by a flu shot? by Bleak09 Q: I was wondering if anyone else thinks that the Desiree Jennings dystonia case from taking the flu shot was a hoax or not. There is news out that she has been cured and there is now videos of her on youtube talking normally. I though dystonia was a incurable disease at least thats what the news made it sound like. I'm starting to think that she did this for publicity but i could be wrong.

A: A number of neurologists found that her symptoms did not match the pattern for dystonia. The pattern seemed more like a psychogenic disorder. Psychogenic does not mean hoax. A psychogenic disorder is real to the patient. Her case was picked up by groups that wanted to exploit the situation.

What Do You Know About Dystonia: It's a Survey, Not Advice? by Melody Q: Describe dystonia, what you know about it, what you wonder about it, and any personal experiences with it. I'm trying to find out what people do and don't know about it, for awareness.

A: It's a neurological movement disorder where people get involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords and can affect anyone at any age. It is the third most common movement disorder after Parkinson’s disease and Tremor. Although there is presently no cure for dystonia, multiple treatment options are available. No single strategy will be appropriate for every case.

Have you had success with Dystonia treatment? by Q: Doctors are beginning to treat me for Idiopathic Dystonia and I wanted to know how many people on here have had success with the current treatments available? Not talking about DPS. Any success stories would be appreciated, spiritual, natural, and/or pharmaceutical.

A: I have a focal dystonia of writers cramp with essential tremors. I've lost most fine control of my hands. The only thing that makes a big difference is Botox. I don't write at all but can still type. I take two meds for tremors. My doctor keeps mentioning brain surgery (I don't think so). The Botox weakens the back of my arm so I don't get locked in spasm. This big thing is that you learn to adapt. It does not bother me anymore that I have hand problems. I'm a college professor and I have found ways of doing everything without a real problem. I correct papers using a tape recorder. I type all of my notes. I am given a classroom near my office so I don't drop things as much. I can't say it really bothers me. I wear a belt pack because I can't get keys out of my pocket. I have my secretary, or my wife, or my kids write for me. I have found ways of getting around everything. That is the secret. You accept it and find ways of moving on. You have problems but you don't let the problems bother you. You are still you and you have not changed.

Would a nerve block help to destroy the nerves that cause Cervical Dystonia? by enetgirl Q: And if this would work then why can they, the Doctor's then, once the offending muscles have been identified from the nerve block then is it possible for them to cure cervical Dystonia or other movement disorders with a permanent nerve block, such as LUNA? I used cervical dystonia as an example so that you could study what I am talking about before you tell me what you think. I want to say thank you for your answers and have a blessed day.

A: I'm not sure that anyone woud wish to destroy nerves, per se, for cervical dystonia when there are options like botox that are effective in the treatment of such conditions. Contact a specialist, e.g a neurologist, dermatologist, physiatrist for consult to see if you're a candidate for such treatment. I wish you well.

Has anyone been diagnosed with or know what dystonia is? by canamia83 Q: Can someone explain to me what the symptoms of Dystonia are and/or feel like? And if their dystonia came from medication side effects or because of something else?

A: Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal postures. The disorder may be inherited or caused by other factors such as birth-related or other physical trauma, infection, poisoning (e.g. lead poisoning) or reaction to drugs. Symptoms vary according to the kind of dystonia involved. In most cases, dystonia tends to lead to abnormal posturing, particularly on movement. Many sufferers have continuous pain, cramping and relentless muscle spasms due to involuntary muscle movements. Early symptoms may include loss of precision muscle coordination (sometimes first manifested in declining penmanship, frequent small injuries to the hands, dropped items and a noticeable increase in dropped or chipped dishes), cramping pain with sustained use and trembling. Significant muscle pain and cramping may result from very minor exertions like holding a book and turning pages. It may become difficult to find a comfortable position for arms and legs with even the minor exertions associated with holding arms crossed causing significant pain similar to restless leg syndrome. Affected persons may notice trembling in the diaphragm while breathing, or the need to place hands in pockets, under legs while sitting or under pillows while sleeping to keep them still and to reduce pain. Trembling in the jaw may be felt and heard while lying down, and the constant movement to avoid pain may result in the grinding and wearing down of teeth, or symptoms similar to TMD. The voice may crack frequently or become harsh, triggering frequent throat clearing. Swallowing can become difficult and accompanied by painful cramping.

What is the relationship, if any, between Dystonia and Epilepsy? by Q: Dystonia is a movement disorder that causes the muscles in the body to expand and contract involuntarily. This movement disorder may, in some cases be confused with seizures. However, can there be a primary causal relationship between the two? If so, what would that be? Any help would be greatly appreciated.

A: Dystonia can be caused by some of the same things as seizures are. Since Epilepsy is a disorder which covers a broad range of problems that cause seizures the two might be casually related this way. The only one thing that stands out positively is that dystonia can be a genetic disorder. Both can be caused by injury (specifically head trauma), inflammation, and a drug reaction. Since the cause of this is of yet unknown with the exception that it has a genetic connection and can be associated with environmental conditions too. There is allot more info available on wikipedia, and since this sounds more like a homework assignment please do the research that you find necessary. Good luck and God Bless

What diseases/conditions include dystonia as a symptom? by kathyinalabama Q: I was diagnosed with cervical dystonia and I am trying to research to find out how I ended up with this. Thanks for your help.

A: Torticollis is another name for your condition. Try a google on it. From what I found, it can be secondary to an injury, or it can be hereditary - does anybody in your family have it? Also, like any other neurological condition, it can be related to more serious conditions, like Huntington's disease. Hopefully this will not be true for you. Good luck.

what is the earliest age at which the Segawa Dystonia manifest? by joserodgt Q: Does anyone knows if the segawa dystonia can manifest at de first year of age? My nephew has the symptons described by segawa but started very early. We havent tried Levodopa yet.

A: http://www.ninds.nih.gov/disorders/dystonias/detail_dystonias.htm http://www.medterms.com/script/main/art.asp?articlekey=5441 http://www.dystonia-foundation.org/pages/more_info/64.php

Can dystonia and spina bifida acculta be connected to developing brain tumors? by swimmer Q: I have been getting bad throbbing headaches in the back of my head on both sides and I get light headed a lot for some reason. I get dystonia and I have spina bifida, so can these be connected to developing brain tumors?

A: No SB has nothing to do with brain tumors. However, you do need to see your neurosurgeon and have a full brain and spine MRI done to check for tether cord and arnold chiari malformation. Spina Bifida Occulta can cause either or both of those conditions.

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