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DocTCole RT @WebMD_Blogs: Chronic Conditions: The ALS Association: Empowering People with Lou Gehrig’s Disease http://t.co/4wAmhoIL

blueprint1913 RT @sarahezekiel: "LIFE WOULD BE BETTER" Without Motor Neurone Disease #MND #ALS

ALifeTAPStastic FELLOW TAPS FANS! Please help @jchawes' friend raise awareness in the fight against ALS (Lou Gehrig's Disease)! Info: http://t.co/vZMxHiN5

SOSKids Chronic Conditions: The ALS Association: Empowering People with Lou Gehrig’s Disease dlvr.it/tjChp @WebMD_Blogs

SOSHopeStore Chronic Conditions: The ALS Association: Empowering People with Lou Gehrig’s Disease dlvr.it/tjChp @WebMD_Blogs

SOSElderly Chronic Conditions: The ALS Association: Empowering People with Lou Gehrig’s Disease dlvr.it/tjChp @WebMD_Blogs

SOSorg Chronic Conditions: The ALS Association: Empowering People with Lou Gehrig’s Disease dlvr.it/tjChp @WebMD_Blogs

Traceylfxp Cigarette smoking may be associated with an increased risk of developing the muscle-wasting disease amyotrophic lateral sclerosis (ALS).

Rachelepwda Cigarette smoking may be associated with an increased risk of developing the muscle-wasting disease amyotrophic lateral sclerosis (ALS).

Baileydoap Cigarette smoking may be associated with an increased risk of developing the muscle-wasting disease amyotrophic lateral sclerosis (ALS).

Cheriejzui Cigarette smoking may be associated with an increased risk of developing the muscle-wasting disease amyotrophic lateral sclerosis (ALS).

Kenyettaopks Cigarette smoking may be associated with an increased risk of developing the muscle-wasting disease amyotrophic lateral sclerosis (ALS).

MoominMumma84 painful, the end of @CrimMinds_CBS tonight! #ALS #LouGerigsDisease (sorry if miss pelt) #MND horrid disease that took my Grandad away :'-(

ohsuneuro RT @westr: A hexanucleotide repeat expansion in C9ORF72 links #ALS & FTD. NRN http://t.co/KdfFB9h6 #pm101 "belong to a disease continuum"

westr A hexanucleotide repeat expansion in C9ORF72 links #ALS & FTD. NRN http://t.co/aVf6ad3D #pm101 "belong to a disease continuum"


Is ALS the same thing as Lou Gehrigs, or is it just another form of the disease? by BigPrimo82 Q: I'm doing a report on ALS for my A&P class. I'm choosing the disease because I have a family member who is suffering through it. My question is, is ALS the original name of the disease , or is it another form of lou gehrigs ?

A: Yes it is the same thing. Here is a great website.

As of this date has there ever been a possible reason or cause of the disease ALS found? by josephmcallen Q: To this day has there ever yet been found a possible reason or cause for the absolutely terrible disease ALS?

A: No, unfortunately. there are some promising theories being pursued, though. Good luck

ALS disease-my father was recently diagnosed and I am wondering...? by Sue M Q: I am wondering what the normal progression is once the disease has begun to effect speech and swallowing? For example, what would a time-line look like as it progresses. What are some of the experiences and difficulties we may encounter. Can this be managed from home? Personal experiences are welcomed.

A: Time to see specialist and counselors, you will need help especially as his breathing get's worse, or if he can't swallow food, he could aspirate, very serious, my mother-law had als but didn't last 4 months after diagnosis, so if it's early maybe 2-10 years, if already in progress, will start to diminish, SORRY, SORRY

What type of genetic disorder is Lou Gehrig's Disease (ALS)? by sabrina♥ Q: Also, who is affected by the disorder?

A: Watch Off the Map by any chance? Ive been having the same problem about thinking about this disease. This isn't exactly a genetic disorder. There was a problem with ALS in Guam, it turned out that there was a toxin in a food they were eating that was causing ALS. Only bout 5% of people have a family history of this disease. Other 95% get it "out of the blue". Just about anyone is affected. Mostly people over the age of 40. 3 men get the diagnosis of ALS for ever 2 women that get diagnosed. Hope this helps :)

Whats the possibility of a person being diagnosed with ALS but actually having Lyme disease? by Megan P Q: My father was diagnosed with ALS almost three years ago and i've heard of people being wrongly diagnosed with ALS but really having Lyme disease. Is there any possibility that this could be the case for my father. Also if anyone has ever had this happen to you or a loved one please share your story.

A: I work with people who have been diagnosed with als and have heard of things like this a couple of times. The thing I have heard is actually more on the lines of the Lyme disease triggering als. Then as the Lyme disease is treated, the als is no longer triggered and the person's condition stabilizes or improves. I am only hearing of this second hand. Here is one article where the person says that is what happened in his case. http://www.democratandchronicle.com/article/20090518/NEWS01/905180326/1002/rss01 In addition, there are things that can be done both about Lyme disease and als that are not commonly used, such as using mind body and holistic methods to solve the problem. I have been teaching people how to do this for a while now and have seen good results for people experiencing all kinds of conditions. So there is another area you could research to help your father heal. Stress has a lot to do with the creation of disease and can factor into the creation of both Lyme disease and als. There are some ideas on my website is at creatingparadise.net. There is much more information out there as well.

What is an ALS disease. How fatal is it and can a patient diagnosed with ALS survive the disease? by mustafa Q:

A: Mustafa, Lou Gehrig's disease is a disorder that is also called amyotrophic lateral sclerosis or ALS. The official name comes from the following Greek words - "a" for without, "myo" for muscle, "trophic" for nourishment, "lateral" for side (of the spinal cord), "sclerosis" for hardening or scarring. So, amyotrophic means that the muscles have lost their nourishment. When this happens, they become smaller and weaker. Lateral means that the disease affects the sides of the spinal cord, where the nerves that nourish the muscles are located; and sclerosis means that the diseased part of the spinal cord develops hardened or scarred tissue in place of healthy nerves. ALS is often called Lou Gehrig's disease after Lou Gehrig, a hall-of-fame baseball player for the New York Yankees who was diagnosed with ALS in the 1930s. People in England and Australia call ALS “Motor Neurone Disease (MND)”. The French refer to it as “Maladie de Charcot”, after the French doctor Jean-Martin Charcot, who first wrote about ALS in 1869. Lou Gehrig's disease damages motor neurons in the brain and spinal cord. Motor neurons are nerve cells that control muscle movement. Upper motor neurons send messages from the brain to the spinal cord, and lower motor neurons send messages from the spinal cord to the muscles. Motor neurons are an important part of the body's neuromuscular system. The neuromuscular system enables our bodies to move and is made up of the brain, many nerves, and muscles. Things that we do every day — like breathing, walking, running, lifting stuff, and even reaching for a glass of water — are all controlled by the neuromuscular system. Over time, Lou Gehrig's disease causes the motor neurons in the brain and spinal cord to shrink and disappear, so that the muscles no longer receive signals to move. As a result, the muscles become smaller and weaker. Gradually the body becomes paralyzed which means that the muscles no longer work. However, someone with ALS, even at an advanced stage, can still see, hear, smell, and feel touch. The nerves that carry feelings of hot, cold, pain, pressure, or even being tickled, are not affected by Lou Gehrig's disease. The parts of the brain that allow us to think, remember, and learn are also not affected by the disease. Although this disease can strike anyone, it is extremely rare in children. According to the ALS Association, most people who develop Lou Gehrig's disease are adults between 40 and 70. Only 2 out of every 100,000 people will get the disease each year. Because it is not contagious, you can't catch ALS from someone who has the disease. According to the ALS Association, about half of all people with ALS live at least 3 years after they find out they have the disease, and 20% (or 1 in five) live 5 years or more. As many as 10% will survive more than 10 years. Stephen Hawking has been living with Lou Gehrig's disease for about 40 years — ever since his diagnosis at age 21. He is the most famous long-term survivor of the disease. Living with Lou Gehrig's disease is physically difficult, but it is reassuring to know that the mind is not affected. People with the disease can think as clearly as ever, are able to maintain relationships with friends and family, and should be treated respectfully and normally. Communication can be difficult because the disease affects the person's breathing and the muscles needed for speech and arm movement. With patience, the families of patients with ALS can learn to communicate effectively with their loved one. Researchers continue to study ALS as they try to understand why it happens, and how the disease damages the motor neurons in the brain and spinal cord. As they learn more about the disease, researchers can continue to develop new and better treatments. ALL ANSWERS SHOULD BE THOROUGHLY RESEARCHED, IN ANY FORUM AND ESPECIALLY IN THIS ONE. - MANY ANSWERS ARE FLAWED. It is extremely important to obtain an accurate diagnosis before trying to find a cure. Many diseases and conditions share common symptoms. The information provided here should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions. I add a link with some details of this subject http://en.wikipedia.org/wiki/ Amyotrophic_lateral_sclerosis Hope this helps matador 89

I have a friend whose mother has the disease ALS (lugarics disease) is there a way for medicare to pay for it? by Chrystal C Q: I was told that my friend's mother was not able to recieve medicare benefits because medicare doesn't want to pay for the treatment of ALS. I was wondering if this was true. I am DESPERATE to find any answers that may help. Thank you for taking the time to respond.

A: Your friend's Mom should definitely be covered, if there is a question click on this site to find the ALS chapter for your state. http://www.alsa.org/community/chapters.cfm?CFID=292454&CFTOKEN=83093816 Your friend can contact the local representative to get assistance & answer questions. Hope this helps! The site gives the following info on Medicare coverage of ALS: As soon as an ALS patient becomes disabled from the disease - is unable to continue working and meets the Social Security eligibility criteria for "disability" - he/she should apply for Social Security Disability. Persons who are disabled do not have to be 65 years old to qualify for Medicare. Until the ALS legislation was passed, eligible disabled Americans with ALS had to wait a total of 29 months for Medicare benefits from the time their Social Security Disability (SSD) application was approved. When the ALS legislation becomes effective on July 1, 2001, ALS patients will be spared 24 of the 29-month waiting period for Medicare benefits. Waiting Period When eligibility for SSD has been approved, it includes Medicare benefits. The standard waiting period for SSD is five months. This period has not been waived. Monthly disability payments for SSD begin after the mandatory five-month waiting period. The amount of the SSD (not Medicare) monthly payment to an individual with ALS for their disability is based on the amount of their covered Social Security earnings for which FICA taxes were paid. When the ALS legislation becomes effective, Medicare benefits will begin at the same time as SSD payments, eliminating the additional 24-month waiting period. Medicare Benefits: What's Covered In general, Medicare covers in-patient hospitalizations including surgery, treatments and inpatient medications. Health care organizations are reimbursed on a prospective method based on the patient's diagnosis. Therefore, this capitated payment system and average length of stay for the same diagnosis and conditions may influence inpatient care treatment plans. Medicare covers selected outpatient care such as diagnostic tests, physician visits and certain therapies. Medicare does not cover out-patient medications and custodial home care. Some limited skilled in-home care is covered. Medicare coverage change effective January 1, 2001 allows Medicare payment for dedicated augmentative/alternative communication devices (AAC). Excluded from this benefit coverage are computerized devices that are not systems dedicated to AAC needs. Most people with ALS require a variety of adaptive devices around the home to assist with activities of daily living. Medicare does not cover the expenses for most assistive/adaptive equipment. A number of people with ALS will benefit from the ALS legislation by receiving Medicare insurance coverage for health care. Under the current system, most people with ALS lose their health insurance once they are no longer able to work. The continuation of benefits under COBRA is an option for some people, but it is time-limited and can be expensive. For those patients who have to go without health care insurance at a time in their lives when they need care and services the most, the ALS legislation can be invaluable in providing coverage for health care and in sparing families from financial disaster. Medicare Payments to Health Care Providers In order to receive payments from Medicare, a health care provider or institution must have a Medicare contract for provider services and must comply with all Medicare regulations and billing practices. Under the ALS Medicare waiver, people with ALS who are not seeking care now because they have no insurance will be able to seek and receive care and their health care provider and clinic or hospital will be able to bill Medicare for payment. Many people who are being seen in ALS clinics and are either self-pay or "charity" will now be covered under Medicare. ALS patients will benefit from the ALS legislation. Medicare payments to most ALS health care providers and medical center ALS clinics may not cover the costs of providing the comprehensive, intensive services delivered. Increased Medicare coverage for people with ALS will improve the fragile economic situation most ALS clinics face on an ongoing basis. It is anticipated that ALS clinics and ALSA Centers may receive a modest increase in Medicare payments for services to newly eligible ALS patients. The ALS Association and Medicare As ALSA does not deliver direct clinical care reimbursable by Medicare - nor does ALSA have a provider contract with Medicare - we will not receive any Medicare payments. Although ALSA chapters that financially support ALSA Centers and ALS clinics should review their agreements, it is unlikely that any increase in Medicare payments to physicians and medical centers constitutes "double payment" for financial support currently provided by the ALSA chapter. In most cases, chapter support goes for providing staff, equipment and special projects such as attending conferences. In general, none of these would constitute "double payments." The current level of ALSA chapter support for their local ALSA Center should not be affected by the new law. Prevalence of Medicare Coverage Data from the ALS CARE database indicate that approximately 37% of people with ALS enrolled in the database have Medicare insurance coverage. An estimated 16% of people with ALS may currently have no health insurance coverage. It can be estimated that a number of these people may be eligible for Medicare through SSD when the ALS legislation goes into effect. The database reports that 47% of respondents report that they have health maintenance organization (HMO) coverage or "commercial" insurance. ALS patients with Medicare coverage who also have other health care insurance - Medi-gap or spousal coverage - should consult their written benefit plans and representatives of each plan to understand the coordination of benefit coverage. In almost all plans, patients are responsible for co-payments and/or deductibles. Lifetime maximum payments of one million dollars are not an uncommon provision in an insurance policy. People with ALS and their families must become knowledgeable about their particular plans and covered benefits. Differences State to State Medicare is a federal program, patients and health care providers may experience some local differences in application of benefit coverage. The county is divided into regional authorities for interpretation and rulings. Visit the Social Security Online Directory to Disability Determination Services in Kansas, Missouri and Nebraska. An Advocate for You It is vital that each person with ALS has an advocacy system in place for his or her health care needs. Whether this is the patient, family member/friend, clinic staff or ALSA staff/volunteer, providing individualized case management for a person with ALS can result in access to services, care and equipment that might otherwise be denied. For more information, contact Mary Lyon at the National Office (818)880-9007 or the ACCESS Program. *****If you have any questions about this information or the Medicare prescription drug benefit, please contact Pat Wildman at [email protected] or toll-free at 1-877-444-ALSA. This information also will be available in the Public Policy section of The ALS Association’s website, under Medicare. ______________ Good luck! For future reference.....your friend's Mother has ALS, Lou Gehrig's Disease, in case you need to find out more info on the disease....it helps to know how to find it with the correct spelling. Hopefully, the ALS advocate can assist your friend's Mother with coverage. There shouldn't be a problem. Good luck!

How come with all the technology we have right now, over decades...we never find a useful cure for als disease? by Uncle Ho Q: I mean in like 70 decades we discovered nothing to even slow it down by far...we only have some stuff that doesnt really work Is there over like 10,000 offcial scientists researching about it and 20,000 student university students researchers world wide, with all the technology and money they need? especially in the jump of technology in the past 2 decades...

A: ALS is only one of many autoimmune disorders that have little or no effective treatment, and certainly no cure. For all our knowledge, the immune system is still little understood. There is some promising research being done in the area of epigenome mapping, but actual clinical application is still years away.

can men with als disease reproduce? by Timothy Q: I want to know if a 57 year old man with advanced als disease can sexually reproduce?

A: Nerve cells effected by this disease is Very hard to get any info for since this is not known very well by doctors but there is research being done and if this effects nerves and muscles bet It does that part of the body as well, You might wish to see your health provider and have some test run to see if you can reproduce or not. But why would you want to at 57 this is when you start to enjoy life take it easy and start to slow down for a spell not bring a child into this world and then have to worry for 20 yrs again. If have a child you will have to care for it till they are grown no matter what sorry to read about your condition Best of Luck Take care and get better if can,

What is the genetic cause associated with ALS disease? by Market Q: What is the genetic cause associated with ALS disease? A. Gene coding for over secretion of the neurotransmitter called acetylcholine. B. A mistake in the DNA that prevents muscle cells from taking up calcium. C. A mutation that causes a faulty protein to be made that adheres to mitochondria. D. A deletion error that prevents muscle fiber from being made properly.

A: as far as i know... None of the above.

ALS (Lou Gehrig's Disease) My Personal Story With ALS (Lou Gehrig's Disease) Amyotrophic Lateral Sclerosis ALS, Motor neurone disease MND MDA ALS/Lou Gehrig's disease portrait: Tim Howard ALS disease Lou Gehrig's Disease (ALS): UCSD Team's Stem Cell Therapy Rationale Lou Gehrig's Disease (ALS): Progress and Promise in Stem Cell Research Lou Gehrig's Disease (ALS): Stem Cell Therapy - A Patient's Perspective Lou Gehrig's Disease (ALS): Progress and Promise in Stem Cell Research Faces of ALS (Lou Gehrig's Disease) Lou Gehrig's Disease (ALS): UCSD Team's Stem Cell Therapy Approach ALS Lou Gehrig's Disease Bay Area Chapter 2011 ALS Lou Gehrig's Disease Bike Ride - Bicycle Outfitters An Act of Fairness - ALS (Lou Gehrig's Disease) PSA Project ALS for Lou Gehrigs Disease ALS SURVIVOR | Lou Gehrig's Disease story: 6 Pals (People w/ ALS): Edith Lou Gehrig's Disease (ALS): Spotlight on Stem Cell Research - Introduction Lou Gehrig's Disease (ALS): Spotlight on Stem Cell Research - Wrapup Rare Disease Day Video Library: ALS and Lynn ALS video, discussing Lyme disease theory Part 1 of 2 Amyotrophic Lateral Sclerosis ALS, Motor neurone disease MND ALS (Lou Gehrig's disease) Research at TGen ALS/Lou Gehrig's Disease: A Family's Story Healing for ALS Lou Gehrig's Disease. Life of No Regrets Lou Gehrig's Disease: The Military Connection and ALS Toto fans support Mike Porcaro and ALS (Lou Gehrigs disease) patients all over the world.... ALS video, discussing Lyme disease theory Part 2 ALS SURVIVOR | Lou Gehrig's Disease story: 6 Pals (People w/ ALS): Cheryl Living with ALS, Lou Gehrig's Disease, and Multiple Sclerosis, MS Corey & Mireille @ ALS Benefit (Lou Gehrig's Disease) @ Cafe Cocomo, SF 2010 Using Stem Cells and Reprogramming to Study Disease: A Case Study in ALS ALS Lou Gehrig's Disease - Benefit for Keri Brown Still ALS SURVIVOR | Lou Gehrig's Disease story: 6 Pals (People w/ ALS): Harry ALS Lou Gehrig's Disease Gene Breakthough Crams on the News ALS Survivor | Lou Gehrig's Disease story: 6 Pals (People w/ ALS): Michael Head Trauma Linked to ALS-Like Disease ALS Research Breakthrough The Disease That Took My Life (Life with ALS) IMAGINE (a film about ALS) TREAT ALS: Discovering New Drugs for Lou Gehrig's Disease ALS Patient Story: Jimmy Everett TEAM Cure ALS Foundation/Mike Lopez #19 ALS disease - Israel ALS Patient Story: Nettie Greene Surviving ALS # 3 - with Dr. Bob Melamede Living with ALS - part 1 MRI research demonstrates ALS attacks multiple parts of the brain ALS Patient Story: Judy Lochridge Often Awesome The Series: An ALS Love Story - Episode 1 Emory Conducting Landmark Study to Treat ALS
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